Pregled bibliografske jedinice broj: 994631
Labels and epilepsy — An online survey of patients and those close to them
Labels and epilepsy — An online survey of patients and those close to them // Epilepsy & behavior, 92 (2019), 253-255 doi:10.1016/j.yebeh.2019.01.015 (međunarodna recenzija, članak, znanstveni)
CROSBI ID: 994631 Za ispravke kontaktirajte CROSBI podršku putem web obrasca
Naslov
Labels and epilepsy — An online survey of patients and
those close to them
Autori
Friedrich, Latica ; Sruk, Ana ; Bielen, Ivan
Izvornik
Epilepsy & behavior (1525-5050) 92
(2019);
253-255
Vrsta, podvrsta i kategorija rada
Radovi u časopisima, članak, znanstveni
Ključne riječi
epilepsy ; epileptic ; labels ; language ; terminology
Sažetak
Publications on the topic of appropriate labels for someone with diagnosed epilepsy have so far almost exclusively consisted of views of professionals in this field. We conducted an online study of patients treated for epilepsy and persons close to them with the aim of identifying which label they prefer, whether they oppose the term "epileptic", and which characteristics are related with their preferences. In total, 328 responses were analyzed. Subjects mostly favored "person-first" terminology ("person having epilepsy" and "person with epilepsy"), and 53.9% disapproved of the term "epileptic". Parents of patients are more likely than patients themselves to favor the label "person having epilepsy" and to disapprove of the label "epileptic". These results can help with shaping future terminology recommendations.
Izvorni jezik
Engleski
Znanstvena područja
Kliničke medicinske znanosti, Interdisciplinarne društvene znanosti
Citiraj ovu publikaciju:
Časopis indeksira:
- Current Contents Connect (CCC)
- Web of Science Core Collection (WoSCC)
- Science Citation Index Expanded (SCI-EXP)
- SCI-EXP, SSCI i/ili A&HCI
- Scopus
- MEDLINE
