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Pregled bibliografske jedinice broj: 551908

Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe : An EpiCom study

Burisch, J.; Čuković-Čavka, Silvija; Kaimakliotis, I.; Shonova, O.; Andersen, V.; Dahlerup, J.F.; Elkjaer, M.; Langholz, E.; Pedersen, N.; Salupere, R. et al.
Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe : An EpiCom study // Journal of Crohn's and Colitis, 5 (2011), 4; 342-349 doi:10.1016/j.crohns.2011.02.016 (recenziran, članak, stručni)

CROSBI ID: 551908 Za ispravke kontaktirajte CROSBI podršku putem web obrasca

Naslov
Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe : An EpiCom study

Autori
Burisch, J. ; Čuković-Čavka, Silvija ; Kaimakliotis, I. ; Shonova, O. ; Andersen, V. ; Dahlerup, J.F. ; Elkjaer, M. ; Langholz, E. ; Pedersen, N. ; Salupere, R. ; Kolho, K.L. ; Manninen, P. ; Lakatos, P.L. ; Shuhaibar, M. ; Odes, S. ; Martinato, M. ; Mihu, I. ; Magro, F. ; Belousova, E. ; Fernandez, A. ; ALmer, S. ; Halfvarson, J. ; Hart, A. ; Munkholm, P.

Izvornik
Journal of Crohn's and Colitis (1873-9946) 5 (2011), 4; 342-349

Vrsta, podvrsta i kategorija rada
Radovi u časopisima, članak, stručni

Ključne riječi
web-based epidemiological database; inflammatory bowel disease

Sažetak
The EpiCom-study investigates a possible East-West-gradient in Europe in the incidence of IBD and the association with environmental factors. A secured web-based database is used to facilitate and centralize data registration. Aim was to construct and validate a web-based inception cohort database available in both English and Russian language. The EpiCom database has been constructed in collaboration with all 34 participating centers. The database was translated into Russian using forward translation, patient questionnaires were translated by simplified forward-backward translation. Data insertion implies fulfillment of international diagnostic criteria, disease activity, medical therapy, quality of life, work productivity and activity impairment, outcome of pregnancy, surgery, cancer and death. Data is secured by the WinLog3 System, developed in cooperation with the Danish Data Protection Agency. Validation of the database has been performed in two consecutive rounds, each followed by corrections in accordance with comments. The EpiCom database fulfills the requirements of the participating countries' local data security agencies by being stored at a single location. The database was found overall to be "good" or "very good" by 81% of the participants after the second validation round and the general applicability of the database was evaluated as "good" or "very good" by 77%. In the inclusion period January 1st -December 31st 2010 1336 IBD patients have been included in the database. A user-friendly, tailor-made and secure web-based inception cohort database has been successfully constructed, facilitating remote data input. The incidence of IBD in 23 European countries can be found at www.epicom-ecco.eu.

Izvorni jezik
Engleski

Znanstvena područja
Kliničke medicinske znanosti



POVEZANOST RADA

Projekti:
108-1081874-1917 - Upalne bolesti crijeva (Crohnova bolest i ulcerozni kolitis) (Vucelić, Boris, MZOS ) ( CroRIS)

Ustanove:
Medicinski fakultet, Zagreb

Profili:

Avatar Url Silvija Čuković-Čavka (autor)

Poveznice na cjeloviti tekst rada:

doi www.ecco-jccjournal.org

Citiraj ovu publikaciju:

Burisch, J.; Čuković-Čavka, Silvija; Kaimakliotis, I.; Shonova, O.; Andersen, V.; Dahlerup, J.F.; Elkjaer, M.; Langholz, E.; Pedersen, N.; Salupere, R. et al.
Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe : An EpiCom study // Journal of Crohn's and Colitis, 5 (2011), 4; 342-349 doi:10.1016/j.crohns.2011.02.016 (recenziran, članak, stručni)
Burisch, J., Čuković-Čavka, S., Kaimakliotis, I., Shonova, O., Andersen, V., Dahlerup, J., Elkjaer, M., Langholz, E., Pedersen, N. & Salupere, R. (2011) Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe : An EpiCom study. Journal of Crohn's and Colitis, 5 (4), 342-349 doi:10.1016/j.crohns.2011.02.016.
@article{article, author = {Burisch, J. and \v{C}ukovi\'{c}-\v{C}avka, Silvija and Kaimakliotis, I. and Shonova, O. and Andersen, V. and Dahlerup, J.F. and Elkjaer, M. and Langholz, E. and Pedersen, N. and Salupere, R. and Kolho, K.L. and Manninen, P. and Lakatos, P.L. and Shuhaibar, M. and Odes, S. and Martinato, M. and Mihu, I. and Magro, F. and Belousova, E. and Fernandez, A. and ALmer, S. and Halfvarson, J. and Hart, A. and Munkholm, P.}, year = {2011}, pages = {342-349}, DOI = {10.1016/j.crohns.2011.02.016}, keywords = {web-based epidemiological database, inflammatory bowel disease}, journal = {Journal of Crohn's and Colitis}, doi = {10.1016/j.crohns.2011.02.016}, volume = {5}, number = {4}, issn = {1873-9946}, title = {Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe : An EpiCom study}, keyword = {web-based epidemiological database, inflammatory bowel disease} }
@article{article, author = {Burisch, J. and \v{C}ukovi\'{c}-\v{C}avka, Silvija and Kaimakliotis, I. and Shonova, O. and Andersen, V. and Dahlerup, J.F. and Elkjaer, M. and Langholz, E. and Pedersen, N. and Salupere, R. and Kolho, K.L. and Manninen, P. and Lakatos, P.L. and Shuhaibar, M. and Odes, S. and Martinato, M. and Mihu, I. and Magro, F. and Belousova, E. and Fernandez, A. and ALmer, S. and Halfvarson, J. and Hart, A. and Munkholm, P.}, year = {2011}, pages = {342-349}, DOI = {10.1016/j.crohns.2011.02.016}, keywords = {web-based epidemiological database, inflammatory bowel disease}, journal = {Journal of Crohn's and Colitis}, doi = {10.1016/j.crohns.2011.02.016}, volume = {5}, number = {4}, issn = {1873-9946}, title = {Construction and validation of a web-based epidemiological database for inflammatory bowel diseases in Europe : An EpiCom study}, keyword = {web-based epidemiological database, inflammatory bowel disease} }

Časopis indeksira:


  • Current Contents Connect (CCC)
  • Web of Science Core Collection (WoSCC)
    • Science Citation Index Expanded (SCI-EXP)
    • SCI-EXP, SSCI i/ili A&HCI
  • Scopus
  • MEDLINE

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