Naslov
Alzheimer Disease Societies Croatia - The annual assembly of the association plus 2009 - 2010 report

Autori
Dajčić, Tajana ; Mimica, Ninoslav

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, sažetak, stručni

Izvornik
Neurologia Croatica 59 (Suppl. 2) - Abstracts of the 5th Croatian Congress on Alzheimer’s Disease with International Participation / Šimić, Goran ; Mimica, Ninoslav - Zagreb : Denona, 2010, 141-143

Skup
5th Croatian Congress on Alzheimer's Diseases with International Participation

Mjesto i datum
Zadar, Hrvatska, 22.09.2010. - 25.09.2010

Vrsta sudjelovanja
Poster

Vrsta recenzije
Domaća recenzija

Ključne riječi
Alzheimer Disease Societies Croatia

Sažetak
On the occasion of a regular annual assembly of the Alzheimer Disease Societies Croatia (ADSC), convened on July 8th, 2010 and attended by numerous Association members, the President of the ADSC, Assist. Prof. Ninoslav Mimica, MD, PhD, submitted the Report on the activities carried out in the foregoing year, the referent period being counting down from the day of the last session and coming down to May 2009-July 2010. Regular activities undertaken from 03/15/2009 to 07/08/2010 From 03/15/2009 on, the Alzheimer Disease Societies Croatia has regularly and continuously pursued its agenda, nested on the newly-opened premises in 24 Vlaška Street. The agenda in reference embraces the following: - Establishment of a Counselling Office meant for AD patients' family members that offeres regular weekly counselling sessions ; keeping that pace up, a total of 58 counselling sessions had been held until 07/08/2010 ; - Caregivers-oriented self-aid groups, which had held their regular weekly meetings ; in line with the foregoing, as many as 57 group meetings had been held in the referent period ; - A "round-the-clock" emergency line, opened throughout a year (24/7) ; counsel and support had been provided not only to numerous AD patients' family members and caregivers calling from all over Croatia, but also to a steadily rising number of callers from Bosnia & Herzegovina. Expert and scientific meetings ADSC members took active part in the following expert and scientific meetings: - 13th Congress of the European Federation of Neurological Societies (EFNS), Florence, Italy - 10th International .Meeting on Cholinesterases, Šibenik, Croatia - 3rd Croatian Congress on Neuroscience and 4th Croatian Congress on Psychopharmacotherapy, Zadar, Croatia - 1st Croatian Congress on Prevention and Rehabilitation in Psychiatry, Sveti Martin na Muri, Croatia - 25th International Conference on Alzheimer Disease International (ADI), Thessaloniki, Greece - 2nd Croatian Congress on Side Effects of Psychopharmacs, Rovinj, Croatia - 7th Croatian Psychiatry Days, Opatija, Croatia - 24th Danube Congress of Psychiatry & Central Neuropsychopharmachological Symposium (CENP), Zagreb, Croatia Promotional - Educational activities Celebration of the World Alzheimer's Day, held on 09/21/2009 ADSC members had celebrated the World Alzheimer's Day by organising an apposite full-day pres entation of the Association and its agenda. Educational materials were displayed on 4 benches placed on the Zagreb Flower Square (Cvjetni Trg) and attended by numerous active members of the Association, as well as by physicians specialised in the field and volunteers, who handed the materials over to the interested parties. For several years now, this initiative keeps going under the motto "Autumn rose for the fall of life", since the apposite sale of roses, exquisite in their beauty, aids in raising funds necessary for the pursuance and fulfilment of the Association's agenda. On the top of that, this symbolic purchase gesture helps in raising public awareness on the ubiquity of this severe condition, as well as in reinforcing humanity in general. ADSC Doors-Open Days, scheduled for 09/21/2009 -- 09/23/2009 The premises of the Association had hosted the "1st Doors-Open Days", allowing all interested parties to come in direct contact with the physicians who collaborate with the Association, as well as with the Headmistress of the Counselling Office, and to gather relevant information. Alzheimer Disease Societies Day For a number of years now, ADSC has been actively involved into the cultural & artistic manifestation named "Summer at the Zrinjevac Park", within the frame of which a full day is devoted solely to the Association promotion and the presentation of its agenda. Insofar, such presentations were held on 07/18/2008, 07/16/2009, and 06/28/2010. This presentation aims at raising and reinforcing the awareness on the existence of the Association, its agenda and achievements throughout a year, as well as at widening the scope of knowledge on Alzhehner disease, the first signs of its onset, and possible aid that can be offered to AD patient's family members. Other activities Within May 2009 - July 2010 timeframe, the ADSC members have written and published two brochures, as follows: -'the brochure entitled "Alzheimer disease - how to recognise it and embrace it", published on the occasion of the World Alzheimer's Day, i.e. on 09/21/2009 (preparéd by M. Dajčić under the expert guidance of N. Mimica, M. Ivičić, G. Šimić, and G. Ivkić) ; - the bulletin entitled "10 years of ADSC activity", published in June 2010 on the occasion of the tenth anniversary of the Alzheimer Disease Soci eties (prepared by M. Dajčić under the expert guidance of N. Mimica) Assembly wrap-up: On the occasion of this year's Assembly, the following conclusions had been reached. - Care provided to AD patients is still inadequate ; on these grounds, the ADSC shall make an urgent motion before Croatian competent authorities and institutions so as to improve that care conformant to the following guidelines: 1, Accommodation of the diseased - The implementation of the provisions laid down by the Ordinance on Accommodation of AD Patients in Elderly Healthcare Centres, as well as the implementation of the applicable Law should beensured ; the procedures relative of AD patients'accommodation should be simplified and made quicker in running ; - An institution aimed at sheltering AD patients should be established without delay - special AD patients-tailored healthcare centres should be built as well ; - More nursing residencies accommodating patients during the day should be opened ; these could operate under the wings of Elderly Health care Centres 2. Treatment of the diseased - AD patients should be supplied with their medication at the expense of the Croatian Institute of Health Insurance (CIHI) ; - AD patients should be cleared for physiotherapy at the expense of the CIHI ; 3. Attitudes towards the patient and his/her caregivers - AD patients should be officially considered as disabled persons - attitudes towards AD patients' family members and caregivers should be greatly improved, since they carry most of the disease burden on their shoulders, therefore greatly contributing to the reduction of workload of both healthcare facilities and social institutions. The state should undertake to clearly define and perceive Alzheimer disease as a public health problem of the 21st century and shape the apposite national disease management strategy.

Izvorni jezik
Engleski

Znanstvena područja
Kliničke medicinske znanosti

Napomena
Indexed / Abstracted in: Neuroscience Citation Indeks ; EMBASE / Excerpta Medica

POVEZANOST RADA