Naslov
Health-realted quality of life in children born with esophagel atresia: perception of parents and children

Autori
Sabolić, Ivana ; Stilinović, Marina ; Špoljarić, Ana ; Pasini, Miram ; Papeš, Dino ; Ćavar, Stanko ; Antabak, Anko ; Luetić, Tomislav

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, sažetak, znanstveni

Izvornik
9th Croatian Congress of Pediatric Surgery with International Participation - Book of abstracts / - , 2022, 54-54

Skup
9th Croatian Congress of Pediatric Surgery with International Participation

Mjesto i datum
Pula, Hrvatska, 21.09.2022. - 24.09.2022

Vrsta sudjelovanja
Poster

Vrsta recenzije
Nije recenziran

Ključne riječi
esophageal atresia

Sažetak
Study was conducted to assess health related quality of life (HRQoL) in patients born with esophageal atresia (EA) and determine whether there is a difference in parents' and children's perception of physical, emotional, social and school/preschool functioning. Pediatric Quality of Life Inventory 4.0 Generic Core Scale (PedsQL questionnaire) was applied to assess quality of physical, emotional, social and school/preschool functioning by self-report (SR) and parent-proxy report (PR). Three age groups were included: 5-7 years, 8-12 years and 13-18 years. HRQoL scores were compared between SR and PR using a paired t test (p≤0.05). Forty-three patients and proxy-parents were included in the study (16 in 5-7 years ; 16 in 8-12 years ; 11 in 13-18 years).Quality of emotional, social and school/preschool functioning was assessed lower among PR. Statistically significant difference was found for emotional functioning in 5-7 years (mean score: PR 77.2 vs. SR 84.7, p= 0.043) and 8-12 years (mean score: PR 85.2 vs. SR 94.9, p= 0.023). In the category of physical functioning, SR of 5-7 and 8-12-year age groups had lower scores than PR, however without statistical significance (5-7 years ; mean score: PR 83.4 vs. SR 77.7, p= 0.331 ; mean score: PR 90.6 vs. SR 87.3, p= 0.138, respectively), whereas in the 13-18 year age group scores were almost equal (mean score: PR 81 vs. SR 82.1). Parents' perception of HRQoL in patients with EA appears to be lower in emotional, social and school/preschool functioning, although significant only for emotional functioning in younger age groups. Conversely, HRQoL for physical functioning tends to be higher by PR than SR in the younger age groups. Difference in perception of HRQoL in patients with EA between parents and children might be associated with parental overprotection and child’s development of concept of illness.

Izvorni jezik
Engleski

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