Naslov
Transition in rheumatology- 5 year experience

Autori
Šenjuga Perica, Marija ; Mayer, Miroslav ; Vidović, Mandica ; Lamot, Lovro ; Harjaček, Miroslav ; Tambić Bukovac, Lana

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, sažetak, stručni

Izvornik
Pediatric Rheumatology / - , 2017, 71-72

Skup
24th Paediatric Rheumatology European Society Congress

Mjesto i datum
Atena, Grčka, 14.09.2017. - 17.09.2017

Vrsta sudjelovanja
Poster

Vrsta recenzije
Međunarodna recenzija

Ključne riječi
transition ; adolescents ; young adults ; pediatric rheumatology

Sažetak
Introduction: Transition for patients with chronic diseases is defined as the purposeful, planned movement of adolescents and young adults from child-centered to adult oriented health care system.1 Rheumatic diseases of childhood extend to adulthood as active diseases in 30-70%, which is the reason for requiring rheumatologic care into adulthood. First coordinated transition of pediatric rheumatologic patients in Croatia was organized in 2012 as developmental type of transition, where patient is gradually prepared for the transition by a pediatrician rheumatologist throughout years preceding transfer. The moment of final transfer to adult care is organized in the pediatric rheumatology clinic, where patients and their parents are meeting adult rheumatologist in known environment (pediatric rheumatology ambulance). At the transfer, patient's history is being presented to the adult rheumatologist and afterwards patient is examined by both of the specialists. At the end of the examination, patient is given next checkup date at adult rheumatologist clinic, where the patient will continue with regular follow up visits. Objectives: Our objective is to verify successfulness of organized transition of pediatric rheumatologic patients to adult care. Methods: We have conducted a retrospective research of patients’ databases at Departments of Pediatric Rheumatology and correlated them with data from adult Clinical Immunology and Rheumatology Department in order to verify number of pediatric patients that have continued with regular follow up in adult care after coordinated transition. Results: During 5 year period (2012.-2017.) 78 patients have been transferred to adult rheumatologist. There were 50 JIA patients, 18 SLE patients, and 10 patients with other rheumatic diseases (8 patients with mixed connective tissue disease, 1 with Wegener's granulomatosis, 1 with fever of unknown origin). Median age at the time of transfer was 19, 6 years (14, 6-26, 6). Patients with SLE were older at the time of transfer than two other groups of patients (SLE 21, 29 ± Pediatric Rheumatology 2017, 15(Suppl 2):64 Page 71 of 191 2, 99 vs. JIA 18, 83 ± 1, 22 vs. other diagnosis 19, 42 ± 2, 8, p < 0, 01). Total of 63 patients (80, 8%) have continued with regular follow up at adult rheumatologist and 15 patients never showed up at adult rheumatologist clinic, probably due to remission of the disease or possible follow up by other chosen adult rheumatologist. Conclusion: Young adults with rheumatic diseases have complex medical and psychological needs and transition to adult care is a critical component of care. In order to maintain adequate level of follow up and prevent additional flares in turbulent adolescent period, continuity of rheumatologic care is essential. By organizing coordinated transition to adult rheumatologist, a most of the pediatric patients with rheumatic disease (80, 8%) are continuing with regular follow up in the adult care. Each transition should be an individually tailored process according to needs and psychological maturity of patients.

Izvorni jezik
Engleski

POVEZANOST RADA