Naslov
Promoting a humane attitude towards children with disabilities. Bioethical approach

Autori
Tomić, Draženko ; Prskalo, Ivan ; Kudek-Mirošević, Jasna

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, neobjavljeni rad, znanstveni

Skup
International Scientific Conference New Perspectives on Global Education, Research and Innovation

Mjesto i datum
Shköder, Albania, 27-28.10.2022

Vrsta sudjelovanja
Predavanje

Vrsta recenzije
Podatak o recenziji nije dostupan

Ključne riječi
bioethics ; Down syndrome ; educational sciences ; euthanasia ; palliative care of children ; pediatrics

Sažetak
In 2022 the authors Tomić, Prskalo, Lorger conducted and published the results of research on the topic of the child in the Zagreb professional journal Glasnik by the Croatian Catholic Medical Society (CCMS) (1991–2021). Although this quarterly journal does not focus on child and childhood research, the authors have shown in their study that the journal is rich in topics about medical and other care for children. In the new paper, the team of authors (Tomić, Prskalo, Kudek-Mirošević) continued the research they had started with the aim of pointing out other topics in this magazine that focused on the child. A special empathy towards children with Down syndrome was observed, which was triggered by the discussion on the termination of pregnancy in case of early detection of the syndrome, but also by the indication of the possibility of euthanasia of such children. The authors did not find that the syndrome itself was described in detail in the journal itself. Continuing on this topic, the authors elaborate on the attitude towards a sick child as "damaged goods", which is the result of a rationalistic and positivist view of the world. In this context, several articles in the paper also dealt with the issue of the moral permissibility of euthanasia of sick children. Palliative care should be an alternative to euthanasia, especially in cases of malignant tumors, HIV infection and other severe forms of children's diseases. This form of care should be focused on the quality of life of the child, it should be continuous and broad enough to include the entire family as support. At the end of the article, the authors pointed to various forms of "good practice" concerning the care of children: care during the war in Croatia, opening of facilities intended for sick and disabled children, volunteer visits by medical workers, helping children in Africa and others. In conclusion, the authors of the article note that the journal approaches children, especially those who are ill, from a professional, bioethical and moral standpoint. The contributions published in the CCMS Glasnik in accordance with the time when they were created contribute to raising the quality of life of children and young people and sensitizing the medical staff of the children's developmental stage and possible difficulties. This issue raises the question of the future of human civilization, as well as the question of the limits of "choice". Will it be allowed to give birth to only top athletes, scientists, children without genetic defects in the future? Such unfortunate attempts were already a part of recent human history, which modern civilization renounces with disgust.

Izvorni jezik
Engleski

Znanstvena područja
Integrativna bioetika (prirodne, tehničke, biomedicina i zdravstvo, biotehničke, društvene, humanističke znanosti)

Napomena
Autori Tomić, Prskalo, Lorger obavili su 2022. i objavili rezultate istraživanja o djetetu u zagrebačkom strukovnom časopisu Glasnik HKLD-a (1991.-2021.). Iako taj tromjesečnik nema u prvom planu istraživanje djeteta i djetinjstva autori su u svom istraživanju pokazali da časopis obiluje temama o medicinskoj i drugoj skrbi za djecu. U novom radu tim autora (Tomić, Prskalo, Kudek-Mirošević) su nastavili započeto istraživanje s ciljem da ukažu i na druge teme u ovom časopisu a koje u središtu imaju dijete. Uočena je posebna empatija prema djeci s Downovim sindromom. Povod je rasprava o prekidu trudnoće u slučaju ranog otkrivanja sindroma, ali i naznaka mogućnosti eutanazije takve djece. Autori nisu naišli da bi sam sindrom u Časopisu bio potanko opisan. Nastavno na ovu temu problematizira se odnos prema bolesnom djetetu kao prema „robi s greškom“. To je rezultat racionalističkog i pozitivističkog pogleda na svijet. U tom kontekstu, nekoliko priloga u listu bavilo se i pitanjem moralne dopustivosti eutanazije bolesne djece. Palijativna skrb bi trebala biti alternativa eutanaziji, ponaosob u slučajevima malignih tumora, HIV infekcije i drugih težih oblika bolesti djece. Taj oblik skrbi treba biti fokusiran na kvalitetu života djeteta, treba biti kontinuirana i dovoljno široka da kao potpora obuhvati cijelu obitelj. Na kraju ovog članka autori su ukazali na različitim oblike „dobre prakse" koja se tiče skrbi za djecu: zbrinjavanje u tijeku rata u Hrvatskoj, otvaranje objekata namijenjenih bolesnoj i invalidnoj djeci, volonterski posjeti medicinskih djelatnika, pomoć djeci u Africi i drugo. Zaključno, autori ovog članka konstatiraju kako časopis sa stručnih, bioetičkih i moralnih postavki pristupa djeci, posebno onoj koja su bolesna. Prilozi objavljeni u Glasniku HKLD-a u skladu s vremenom kad su nastale doprinose podizanju kvalitete života djece i mladih te senzibiliziraju medicinsko osoblje dječje razvojne faze i eventualne poteškoće. Ova problematika nameće pitanje o budućnosti humane civilizacije, kao i pištanje o granicama "izbora". Hoće li se u budućnosti dopuštati rađanje samo vrhunskih sportaša, znanstvenika, djece bez genetske greške? Takvi pokušaji već su bili dio nesretnog dijela nedavne ljudske povijesti, kog se suvremena civilizacija s gnušanjem odriče.

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