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Pregled bibliografske jedinice broj: 1193960

Using both clinical research and population-based cancer registry in long-term research- a case study using EORTC trials and the Dutch national cancer registry (IKNL).

Liu, L; Neven, A; Giusti, F; Maraldo, MV; Meijnders, P; Aurer, Igor; Fortpied, C; Collette, L; Visser, O
Using both clinical research and population-based cancer registry in long-term research- a case study using EORTC trials and the Dutch national cancer registry (IKNL). // Journal of cancer policy, 24 (2020), 100226, 8 doi:10.1016/j.jcpo.2020.100226 (međunarodna recenzija, članak, znanstveni)

CROSBI ID: 1193960 Za ispravke kontaktirajte CROSBI podršku putem web obrasca

Naslov
Using both clinical research and population-based cancer registry in long-term research- a case study using EORTC trials and the Dutch national cancer registry (IKNL).

Autori
Liu, L ; Neven, A ; Giusti, F ; Maraldo, MV ; Meijnders, P ; Aurer, Igor ; Fortpied, C ; Collette, L ; Visser, O

Izvornik
Journal of cancer policy (2213-5383) 24 (2020); 100226, 8

Vrsta, podvrsta i kategorija rada
Radovi u časopisima, članak, znanstveni

Ključne riječi
EORTC IKNL Hodgkin’s lymphoma Case study Data linkage Clinical research organization Population-based registries

Sažetak
Objectives: There are more than 12 million long- term survivors of cancer in Europe. Yet, research on outcomes of cancer treatment has not reached its full potential due to operational, regulatory and methodological constrains. The current study aims to show the complementary roles between clinical research and population- based cancer registry in this research field. Methods: The authors used an empirical case study to show the level of agreement of variables between two databases of the same patients diagnosed with Hodgkin Lymphoma treated in the European Organisation for Research and Treatment of Cancer (EORTC) H1-H9 trials: one database is the clinical trial database from the EORTC and the other is the Netherlands Cancer Registry (IKNL). Results: The study showed a high level of agreement between the two datasets in most of the variables. However the vital status was more complete in the registry database, in particular for survivors diagnosed with cancer more than 10 years ago whereas treatment registration was more complete and in the EORTC clinical trial database. Conclusion: The current case study is based on one single disease area and one cancer registry, which needs further research to prove its feasibility in other settings. Nevertheless the authors have envisagedseveral actionable collaboration activities between clinical research organizations and population-based registries in longterm outcome studies in the future, including data linkage, joint methodology development, data quality crosscheck and improvement program.

Izvorni jezik
Engleski

Znanstvena područja
Kliničke medicinske znanosti



POVEZANOST RADA

Ustanove:
Medicinski fakultet, Zagreb,
Klinički bolnički centar Zagreb

Profili:

Avatar Url Nevenka Adler (autor)

Avatar Url Igor Aurer (autor)

Poveznice na cjeloviti tekst rada:

Pristup cjelovitom tekstu rada doi

Citiraj ovu publikaciju:

Liu, L; Neven, A; Giusti, F; Maraldo, MV; Meijnders, P; Aurer, Igor; Fortpied, C; Collette, L; Visser, O
Using both clinical research and population-based cancer registry in long-term research- a case study using EORTC trials and the Dutch national cancer registry (IKNL). // Journal of cancer policy, 24 (2020), 100226, 8 doi:10.1016/j.jcpo.2020.100226 (međunarodna recenzija, članak, znanstveni)
Liu, L., Neven, A., Giusti, F., Maraldo, M., Meijnders, P., Aurer, I., Fortpied, C., Collette, L. & Visser, O. (2020) Using both clinical research and population-based cancer registry in long-term research- a case study using EORTC trials and the Dutch national cancer registry (IKNL).. Journal of cancer policy, 24, 100226, 8 doi:10.1016/j.jcpo.2020.100226.
@article{article, author = {Liu, L and Neven, A and Giusti, F and Maraldo, MV and Meijnders, P and Aurer, Igor and Fortpied, C and Collette, L and Visser, O}, year = {2020}, pages = {8}, DOI = {10.1016/j.jcpo.2020.100226}, chapter = {100226}, keywords = {EORTC IKNL Hodgkin’s lymphoma Case study Data linkage Clinical research organization Population-based registries}, journal = {Journal of cancer policy}, doi = {10.1016/j.jcpo.2020.100226}, volume = {24}, issn = {2213-5383}, title = {Using both clinical research and population-based cancer registry in long-term research- a case study using EORTC trials and the Dutch national cancer registry (IKNL).}, keyword = {EORTC IKNL Hodgkin’s lymphoma Case study Data linkage Clinical research organization Population-based registries}, chapternumber = {100226} }
@article{article, author = {Liu, L and Neven, A and Giusti, F and Maraldo, MV and Meijnders, P and Aurer, Igor and Fortpied, C and Collette, L and Visser, O}, year = {2020}, pages = {8}, DOI = {10.1016/j.jcpo.2020.100226}, chapter = {100226}, keywords = {EORTC IKNL Hodgkin’s lymphoma Case study Data linkage Clinical research organization Population-based registries}, journal = {Journal of cancer policy}, doi = {10.1016/j.jcpo.2020.100226}, volume = {24}, issn = {2213-5383}, title = {Using both clinical research and population-based cancer registry in long-term research- a case study using EORTC trials and the Dutch national cancer registry (IKNL).}, keyword = {EORTC IKNL Hodgkin’s lymphoma Case study Data linkage Clinical research organization Population-based registries}, chapternumber = {100226} }

Časopis indeksira:


  • Web of Science Core Collection (WoSCC)
    • Emerging Sources Citation Index (ESCI)
  • Scopus

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