Naslov
Characteristics of orthopedic status and impact on the quality psychosocial functioning of persons with hemophilia

Autori
Marko, Marinić ; Silva, Zupančić Šalek

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, sažetak, znanstveni

Izvornik
13th International Musculoskeletal Congress / - , 2013, 47-47

Skup
13th International Musculoskeletal Congress

Mjesto i datum
Chicago (IL), Sjedinjene Američke Države, 18.04.2013. - 21.04.2013

Vrsta sudjelovanja
Poster

Vrsta recenzije
Međunarodna recenzija

Ključne riječi
psychosocial, hemophilia, quality of life

Sažetak
Research on the relationship between (poor) body conditions of persons with various physical disabilities and their psycho-social functioning are not always unambiguous. While on the one hand, research shows a negative correlation between the degree of disability and the mentioned areas, the other refers to the so-called “disability paradox, ” or high quality of life despite the poor state of the body. Therefore, we wanted to investigate the nature the relationship between quality orthopedic status and psychosocial functioning of persons with hemophilia. An empirical survey among adults with hemophilia was conducted in Croatia (N=135). To determine orthopedic status we used: the scale of bleeding frequency in individual joints (elbow, knee, and ankle) ; the scale of damage levels of each joint ; the scale of pain frequency, the scale of average pain intensity and the scale of physical mobility. The quality of psychosocial func- tioning was measured by using the Life Satisfaction Scale, the Emotional Functioning Scale the Mental Health Scale, and the Relationships and Social Activity Scale. We also used a variety of socio-demographic variables. The results show a significant correlation of all analyzed orthopedic status domains with psychosocial functioning. Frequent bleeding in joints, greater damage to joints, greater problems with mobility, and frequent and intense pain were negatively correlated with emotional functioning, mental health, relationships and social activity, and life satisfaction. It is interesting to note that the highest correlation was found in relation to knee damage and it seems that knee problems are precisely the biggest problems for people with hemophilia. It is also interesting to note that the worst results (in all forms of psychosocial functioning) were obtained from respondents who were between 40 and 50 years old. The results, among other things, show that the poor ortho-pedic status of hemophilia patients is not only an indication of major problems with regard to physical functioning, but that this greatly impacts other domains of human life. Therefore, to preserve the quality of psychosocial functioning, it is extremely important to receive quality medical care to ensure health of the musculoskeletal system. Moreover, the implementation of counselling for patients about the easiest ways of coping with these problems is also necessary.

Izvorni jezik
Engleski

Znanstvena područja
Kliničke medicinske znanosti, Sociologija, Psihologija, Interdisciplinarne društvene znanosti

POVEZANOST RADA