Naslov
Management of coeliac disease patients after the confirmation of diagnosis in Central Europe

Autori
Riznik, Petra ; De Leo, Luigina ; Dolinsek, Jasmina ; Gyimesi, Judit ; Klemenak, Martina ; Koletzko, Berthold ; Koletzko, Sibylle ; Koltai, Tunde ; Korponay-Szabó, Ilma Rita ; Krencnik, Tomaz ; Milinovic, Marina ; Not, Tarcisio ; Palcevski, Goran ; Sblattero, Daniele ; Werkstetter, Katharina Julia ; Dolinsek, Jernej

Izvornik
European Journal of Gastroenterology & Hepatology (0954-691X) 34 (2022), 1; 27-32

Vrsta, podvrsta i kategorija rada
Radovi u časopisima, članak, znanstveni

Ključne riječi
adults , coeliac disease , children , Central Europe , management

Sažetak
Background Recently published paediatric guidelines for diagnosing coeliac disease do not include recommendations on the follow-up of coeliac disease patients. Goal The aim of this study was to assess the management practices and experience of coeliac disease patients with their follow-up appointments in Central Europe. Study Gastroenterologists and coeliac disease patients in five Central European countries were asked to complete the web-based questionnaire focusing on coeliac disease management practices. Results Answers from 147 gastroenterologists and 2041 coeliac disease patients were available for the analysis. More than half of the gastroenterologists (58.5%) schedule the first follow-up visit within 3 months after the diagnosis. At follow-up, tissue transglutaminase antibodies are checked in almost all patients (95.9%). Approximately two-thirds (60.7%) of gastroenterologists refer all of their patients to the dietitian at diagnosis. Similarly, 42.8% of coeliac disease patients reported that they had not been appointed to a dietitian. Almost one- third of coeliac disease patients (30.8%) reported that they had no follow-up appointments with gastroenterologist at all. Conclusions Follow-up of coeliac disease patients is suboptimal in Central Europe. Many patients are not followed regularly. A lot of patients are not referred to a dietitian. The recommendations on the optimal follow-up of coeliac disease patients are needed in order to improve patient care.

Izvorni jezik
Engleski

Znanstvena područja
Kliničke medicinske znanosti

POVEZANOST RADA