Naslov
Wolf-Hirschhorn sindrom – multimodalni pristup u poticanju komunikacije
(Wolf-Hirschhorn Syndrome - Multimodal Approach in Promoting Communication)

Autori
Rožić, Maja ; Ivšac-Pavliša, Jasmina ; Milković, Marina ; Feješ, Andrea

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, sažetak, stručni

ISBN
978-953-55555-1-3

Skup
5. kongres hrvatskih logopeda: Multidisciplinarnost u u području logopedske znanosti i prakse

Mjesto i datum
Osijek, Hrvatska, 24.09.2015. - 26.09.2015

Vrsta sudjelovanja
Predavanje

Vrsta recenzije
Domaća recenzija

Ključne riječi
Wolf-Hirschhornov sindrom ; multimodalni pristup ; poticanje komunikacije
(Wolf-Hirschhorn Syndrome ; multimodal approach ; promoting communication)

Sažetak
Wolf-Hirschhorn syndrome (WHS) is caused by distal deletion of the genetic material of the short arm of the chromosome 4. The WHS is characterized by a specific phenotype and multiple malformations. Language and speech development in children with WHS is especially delayed. Language comprehension is limited to a particular context and understanding of simple commands, whereas the speech production is usually absent or significantly reduced. The aim of this research paper is to describe the case of the girl with a Wolf-Hirschhorn syndrome with an emphasis on introducing alternative and augmentative communication. Withal, the review of the parental role in the intervention period will be given. Intervention with the girl, who was 7 years and 6 months old at the start of the research, was organized in individual sessions once per week in family home over 6 months. Multimodal approach implied an implementation of the alternative and augmentative communication in the form of low-tech aids (images, photographs, flashcards), hi-tech aids (ICT-AAC apps on the tablet) and manual communication (individually simplified signs of Croatian Sign Language). Simultaneously, intervention was tending to increase the communicative functions, means of communication, language comprehension, speech production and pre-reading and pre-writing skills development. The work has been video-documented once a month. On the basis of video analysis the communicative functions and the means of communication were measured. The girl was examined by Croatian versions of: Peabody Picture Vocabulary Test (PPVT-III-HR), Communication Development Inventories II (Koralje) and Pragmatic Profile of Everyday Communication Skills. At the end of the intervention, the girl has demonstrated mild progress in the number of communicative functions, complexity of the means of communication and pre-reading and pre-writing skills. Moreover, in terms of promoting communication in the everyday life, the cooperation with parents has been accomplished.

Izvorni jezik
Hrvatski

Znanstvena područja
Logopedija

POVEZANOST RADA