Naslov
Uses and abuses of bodily privacy in regulating personalized medicine

Autori
Barić, Sanja ; Miloš, Matija

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, ostalo, znanstveni

Skup
Personalised medicine- research diagnostic: indicator or information

Mjesto i datum
Rijeka, Hrvatska, 12.11.2018. - 13.11.2018

Vrsta sudjelovanja
Predavanje

Vrsta recenzije
Recenziran

Ključne riječi
uses ; abuses ; bodily privacy ; personalized medicine

Sažetak
The notion of “personalized medicine” implies that the “personalized” medical treatment is tailored to individual patients. The personalization of the medical intervention bears with it the potential to expand one’s capacity to make choices that alleviate medical conditions and, blurring the line between healing and self-improvement, improve one’s livelihood. In law, the natural reflection of personalized medicine thus appears to be privacy, traditionally associated precisely with the ability to choose. In this paper, we want to probe and critique the role of privacy as an enabler of choice in the debate on regulating personalized medicine. Our discussion proceeds in several parts. We first examine how arguments from privacy are deployed in the existing debates on personalized medicine. Then we reflect on the connection between privacy and the body, developing a notion of “bodily privacy”. We then proceed to examine two of its functions: first, to define relationships to one’s body and between different bodies and, secondly, to serve as a boundary between different discourses that revolve around individual bodies in the context of personalized medicine. We conclude by commenting on how law may adapt to enhance the agency of individuals in a matter of rapid scientific progress.

Izvorni jezik
Engleski

Znanstvena područja
Pravo

POVEZANOST RADA