Naslov
Use and abuse of bodily privacy in regulating personalized medicine: probing bioconstitutionalism

Autori
Miloš, Matija

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, neobjavljeni rad, ostalo

Skup
Istraživačka dijagnostika: indikator ili informacija

Mjesto i datum
Rijeka, Hrvatska, 12.11.2018. - 13.11.2018

Vrsta sudjelovanja
Predavanje

Vrsta recenzije
Podatak o recenziji nije dostupan

Ključne riječi
personalized medicine, privacy, bioconstitutionalism, fundamental rights

Sažetak
Personalized medicine has always been about defining the human body, its health and its relationship to disease. In this paper, we want to pay particular attention to the contemporary shift to personalization, characterised by its reliance on gene-based technologies. It is at this time that it is becoming possible to construct one’s bodiliness without regard for one’s personhood which, in turn, generates spaces for a multiplication of ways the body is conceptualised. Against this background, we evaluate the effort to thicken the liberal approach to health law through a distinct understanding of bioconstitutionalism, deployed as a normative rather than a descriptive concept. Contrary to authors who claim that the constitution may be interpreted as to protect the ultimate limits of human bodiliness, we argue that a normative understanding of bioconstitutionalism in personalized medicine fails to take into account the fraught state of the political and its relationship to privacy in introducing gene-based approaches to medicine.

Izvorni jezik
Engleski

Znanstvena područja
Pravo

POVEZANOST RADA