Naslov
By improving knowledge in genetics, we spread out the understanding of the genetics impact on the prevention and treatment of oncology patients - an example of good cooperation practice between institutions and civil society organizations

Autori
Serman, Ljiljana ; Zigman, Tamara ; Dedic Plavetic, Natalija ; Erceg Tusek, Maja ; Serman, Nikola ; Vukota, Ljiljana

Vrsta, podvrsta i kategorija rada
Sažeci sa skupova, sažetak, znanstveni

Izvornik
Abstracts from the 55th European Society of Human Genetics (ESHG) Conference: e-Posters. Eur J Hum Genet 31 (Suppl 1), 91–344 (2023). https://doi.org/10.1038/s41431-023-01339-3 / - : Springer Nature, 2022, 324-325

Skup
55th European Society of Human Genetics (ESHG)

Mjesto i datum
Beč, Austrija, 11.06.2022. - 14.06.2022

Vrsta sudjelovanja
Poster

Vrsta recenzije
Međunarodna recenzija

Ključne riječi
genetic impact, oncology patients, civil society organizations

Sažetak
Background/Objectives: Recent years have witnessed a growing need to educate oncology patients about genetics. Methods: From 2014, we have educated 500 oncology patients and their family members through the civil association “Everything for her”. Through 13 lectures and 150 individual consultations we explained, in a simple and understandable way, the connection between genes and cancer development as well as the impact of targeted treatment on these processes with the aim to look at genetics from another, patient-friendly, side. Results: All of the above resulted with the Genetic testing guidelines for hereditary cancers published in 2017, as well as a number of educational materials on the “Everything for her” digital media. The knowledge gained during these activities was shared with 1418 medical students and 30 students of postgraduate oncology study. The activities also led to the development of the Outpatient Clinic for Hereditary Cancer Patients at the University Hospital Center Zagreb, which performs 16 tests for hereditary cancers monthly. All acters cooperate in sharing knowledge, information, and the possibility of genetic testing for hereditary cancers in both oncology patients and their family members. Conclusion: Based on these results we are convinced that spreading knowledge about genetics through lectures and individual consultations would significantly improve the understanding of genetics in our country and make this aspect of the organism functioning closer to oncology patients.

Izvorni jezik
Engleski

Znanstvena područja
Temeljne medicinske znanosti, Kliničke medicinske znanosti

POVEZANOST RADA