engleski

Evaluation of the Quality of Life for Parents and Caregivers of Adults with Intellectual Disabilities in the Local Community

The quality of life is an important component in the development of target interventions related to the inclusion of families in the wider social community. The goal of this research was to test the degree of the quality of life for parents and custodians of adults with intellectual disabilities as a whole and by domains and to check the relationship of the quality of life and socio-demographic features of the participants in this research. Forty parents of adults with intellectual disability took part in the study. A convenience sample from the area of the city of Zagreb and the Zagreb County was used in referential centres and associations caring for adult with intellectual disabilities older than 21 years of age. For the purpose of this study, we have used the Personal Wellbeing Index for the evaluation of the quality of life and welfare of parents and custodians of persons with intellectual disabilities. The results of the research indicate that the perceived quality of life of the parents does not deviate from the values that can be found in the healthy population. Parents have also evaluated the quality of life of their children and the result has shown that they are moderately satisfied. There is a major connection between the evaluation of the quality of life of the parents and their evaluation of the quality of life of their children. The more satisfied parents are with their quality of life, i.e. the better they estimate their personal welfare, the better are the evaluations for the quality of life of their children. The research results point that there is no statistically significant difference in the evaluation of the quality of life between the groups that differ with regard to: gender, inclusion in the physical activity and presence of other disabilities.

quality of life ; parents and custodians of adult persons with intellectual disabilities ; predictors of the quality of life

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