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Pregled bibliografske jedinice broj: 519053

Ethical aspects of human biobanks: a systematic review


Budimir, Danijela; Polašek, Ozren; Marušić, Ana; Kolčić, Ivana; Zemunik, Tatijana; Boraska, Vesna; Jerončić, Ana; Boban, Mladen; Campbell, Harry; Rudan, Igor
Ethical aspects of human biobanks: a systematic review // Croatian medical journal, 52 (2011), 3; 262-279 (međunarodna recenzija, pregledni rad, znanstveni)


CROSBI ID: 519053 Za ispravke kontaktirajte CROSBI podršku putem web obrasca

Naslov
Ethical aspects of human biobanks: a systematic review

Autori
Budimir, Danijela ; Polašek, Ozren ; Marušić, Ana ; Kolčić, Ivana ; Zemunik, Tatijana ; Boraska, Vesna ; Jerončić, Ana ; Boban, Mladen ; Campbell, Harry ; Rudan, Igor

Izvornik
Croatian medical journal (0353-9504) 52 (2011), 3; 262-279

Vrsta, podvrsta i kategorija rada
Radovi u časopisima, pregledni rad, znanstveni

Ključne riječi
ethics; human biobanks; genetic databases; informed consent; minor; data exchange; privacy; commercialization; ethic boards; public trust

Sažetak
Aim was to systematically assess the existing literature on ethical aspects of human biobanks. We searched the Web of Science and PubMed databases to find studies addressing ethical problems in biobanks with no limits set (study design, study population, time period, or language of publication). All identified articles published until November 2010 were included. We analyzed the type of published articles, journals publishing them, involvement of countries/institutions, year of publication, and citations received, and qualitatively assessed every article in order to identify ethical issues addressed by the majority of published research on human biobanking. Hundred and fifty four studies satisfied our review criteria. The studies mainly came from highly developed countries and were all published in the last two decades, with over half of them published in 2009 or 2010. They most commonly discussed the informed consent, privacy and identifiability, return of results to participants, importance of public trust, involvement of children, commercialization, the role of ethics boards, international data exchange, ownership of samples, and benefit sharing. The focus on ethical aspects is strongly present through the whole biobanking research field. Although there is a consensus on the old and most typical ethical issues, with further development of the field and increasingly complex structure of human biobanks, these issues will likely continue to arise and accumulate, hence requiring constant re-appraisal and continuing discussion.

Izvorni jezik
Engleski

Znanstvena područja
Temeljne medicinske znanosti, Kliničke medicinske znanosti



POVEZANOST RADA


Projekti:
108-1080229-0140 - Molekularne interakcije koštanog i imunološkog sustava (Marušić, Ana, MZOS ) ( POIROT)
108-1080315-0255 - Rizici za višekratne nesreće među ozlijeđenima na bolničkom liječenju (Vorko-Jović, Ariana, MZOS ) ( POIROT)
216-1080315-0293 - Genetska epidemiologija šećerne bolesti tip 1 u populaciji Hrvatske (Zemunik, Tatijana, MZOS ) ( POIROT)
216-1080315-0302 - Odrednice zdravlja i bolesti u općoj i izoliranim ljudskim populacijama (Polašek, Ozren, MZOS ) ( POIROT)

Ustanove:
Medicinski fakultet, Split,
Arheološki muzej u Zagrebu

Citiraj ovu publikaciju

Budimir, Danijela; Polašek, Ozren; Marušić, Ana; Kolčić, Ivana; Zemunik, Tatijana; Boraska, Vesna; Jerončić, Ana; Boban, Mladen; Campbell, Harry; Rudan, Igor
Ethical aspects of human biobanks: a systematic review // Croatian medical journal, 52 (2011), 3; 262-279 (međunarodna recenzija, pregledni rad, znanstveni)
Budimir, D., Polašek, O., Marušić, A., Kolčić, I., Zemunik, T., Boraska, V., Jerončić, A., Boban, M., Campbell, H. & Rudan, I. (2011) Ethical aspects of human biobanks: a systematic review. Croatian medical journal, 52 (3), 262-279.
@article{article, year = {2011}, pages = {262-279}, keywords = {ethics, human biobanks, genetic databases, informed consent, minor, data exchange, privacy, commercialization, ethic boards, public trust}, journal = {Croatian medical journal}, volume = {52}, number = {3}, issn = {0353-9504}, title = {Ethical aspects of human biobanks: a systematic review}, keyword = {ethics, human biobanks, genetic databases, informed consent, minor, data exchange, privacy, commercialization, ethic boards, public trust} }
@article{article, year = {2011}, pages = {262-279}, keywords = {ethics, human biobanks, genetic databases, informed consent, minor, data exchange, privacy, commercialization, ethic boards, public trust}, journal = {Croatian medical journal}, volume = {52}, number = {3}, issn = {0353-9504}, title = {Ethical aspects of human biobanks: a systematic review}, keyword = {ethics, human biobanks, genetic databases, informed consent, minor, data exchange, privacy, commercialization, ethic boards, public trust} }

Časopis indeksira:


  • Current Contents Connect (CCC)
  • Web of Science Core Collection (WoSCC)
    • Science Citation Index Expanded (SCI-EXP)
    • SCI-EXP, SSCI i/ili A&HCI
  • Scopus
  • MEDLINE





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