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P221 Quality of life in adult and children with cystic fibrosis during the COVID-19 pandemic in Croatia

Objectives: The aim of this study is to examine the impact of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) on quality of life among cystic fibrosis (CF) patients in Croatia. Methods: The study was conducted on a sample of 30 adults patients older than 19 years (17/30 female) and 42 paediatric patients with cystic fibrosis, from preschool children to 18 years (25/42 female). The patients were recruited from our CF Centre. Patients answered 15 short questions regarding their subjective perception of quality of life during the second wave of the SARS-CoV-2 pandemic in Croatia. Results: None of the patients answered they were positive to SARS-CoV-2 during the second wave of the pandemic. Half of adult CF patients were concerned about the virus, but only one (3.3%) neglected a control visit to the doctor. 18/30 of adult were less active during the pandemic. 5/30 (16.7%) had more frequent exacerbations of the disease. Around one quarter (26.7%) lost weight, while half gained weight. Half of adult CF patients feel that their quality of life is significantly impaired during this pandemic. In paediatric patients, almost half of the questionnaires were answered by parents or guardians. In CF children (N = 42), about three quarters were concerned about the virus and one fifth neglected control. Three fifths of children were less active, and 2/42 had more frequent exacerbations. Weight loss was recorded in 5/42 (12%), and more than half gained weight. Half of paediatric patients have a poorer quality of life than before the pandemic. Conclusion: In our survey, we have shown both adults and children were less active and had more frequent CF exacerbations and a substantial number of them lost weight. To conclude, the overall quality of life in adults and children with cystic fibrosis was significantly impaired.

quality of life, cystic fibrosis, COVID 19

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