engleski

Translation and pilot study of the Cleft Hearing Appearance and Speech Questionnaire (CHASQ)

It is of concern that often no routine psychosocial assessment is carried out, that patients rarely discuss psychosocial issues and that patient and clinician judgement of appearance do not correlate. These conditions mean that often a decision about treatment is made by a clinician based only on an assumption of the patient opinion. In addition, the decision is taken without information concerning the psychosocial situation of the patient, which for some patients is the most difficult part of having a cleft [31]. Therefore, it is essential for a cleft team to include assessments of PRO and psychosocial outcome into standard practice of care. To enable cleft teams to learn as much as possible from a wide variety of experience, it is desirable for cleft teams to use an internationally accepted outcome measure. The objective of this study was to: 1. Translate CHASQ into the following languages: Bulgarian, Estonian, Greek, Latvian, Macedonian, Romanian, Serbian and Swedish 2. Investigate whether scores were comparable across countries 3. Investigate how clinicians experienced implementation of the instrument

Patient reported outcomes ; Cleft lip and/or cleft palate ; International cooperation ; Translation ; Qualitative

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